HOPES is a team of faculty and undergraduate students at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to the public. Our goal is to survey the rapidly growing scientific literature on HD and to present this information in a web source. We seek to provide information about causes, symptoms and treatment of HD that reflects current scientific understanding of HD. To date, HOPES resources have reached out to families in over 47 countries.
We emphasize that we are neither medical professionals, nor are we affiliated with the researchers and laboratories mentioned on our pages. The information we present is intended for educational purposes only and should not be construed as offering diagnoses or recommendations. We operate as a not-for-profit public service organization, and our funding is entirely from private sources.
Meet the HOPES Team
|Kristen Powers (Project Leader & Student Researcher)
Kristen (HasSuper) Powers is an enthusiastic member of the Class of 2016, trying to make her generation the last one with Huntington’s disease. After watching her mum struggle with the disease and facing her own at-risk status, Kristen set out to make a documentary called Twitch (twitchdocumentary.com) to highlight the challenges faced by those enduring Huntington’s disease and genetic testing. Thankfully, she tested negative and is now even more excited to have the chance to throw surprise birthday parties, meet cool people all over the world, and find her way out of Stanford’s Green Library. Fun Fact: She lives on a farm with 40 pets in North Carolina.
|Will St. Amant (Student Researcher)
Will is thrilled to have been working for HOPES for over two years. He is a senior majoring in Human Biology with a concentration in “Infectious Disease and Public Health”. His favorite HOPES memory is going to Rio de Janeiro with a small team for the Huntington’s Disease World Congress in 2013, which helped HOPES increase its global presence with the launch of a Global Section to our site. He also enjoys writing articles after interviewing some of HD’s major researchers both in the Bay Area and Atlanta, his hometown. He plans to be a physician one day.
|Serenity Nguyen (Graphic Designer)
Serenity is a junior majoring in Mechanical Engineering and joined HOPES as a Graphic Designer. She is interested in contributing to HOPES’ intellectual coffers concerning Huntington’s Disease and looks forward to utilizing her passion for design and art to do so. She enjoys music of the lowest fidelity and improving her vertical jump. One day she plans to move to Portland to manage a chain of off-brand micro-breweries.
|Lina Vadlamani (Student Researcher)
A student researcher with HOPES, Lina Vadlamani is Junior majoring in Human Biology with a concentration in Global Health Policy. She hopes to combine her love for biology and writing to help make information about HD accessible to everyone. She strongly believes in the HOPES mission to empower patients and families through outreach, and her favorite part of the job is meeting other members of the HD community. She also enjoys volunteering with Stanford’s Pacific Free Clinic and Team HBV. Her favorite color is purple and and spends much of her time wondering how to get her next chocolate fix.In her spare time, she loves pretending that her life is a Bollywood movie, including impromptu dance sequences.
|Stephanie Tang (Webmaster)
Stephanie is part of the Class of 2017 and is majoring in Computer Science. She joined HOPES in the Spring of 2014 as a web designer and graphic designer, but has since shifted most of her attention to the web design aspect. In her limited free time, she draws couture gowns and character designs in Photoshop, and paints fantasy landscapes and seascapes with oil paints. Additionally, she figure skates at the ice rink or shoots arrows at the range as time permits. Someday in the future, she wants to visit the Shire in New Zealand.
|Natty Jumreornvong (Student Researcher)
Having lost her childhood friend due to loss medical records, Natty co-founded QRist, a technology company utilizing emerging technologies such as Google Glass, touch ID mobile application and electronic health records system to develop tools for doctors to quickly access urgent patient information hands free and to set up secured, digitized electronic medical records system for 20 mobile clinics and 10,000+ patients. In addition, her company’s Google Glass application also enables the disabled, elderly and otherwise visually impaired to seamlessly access printed labels. Other than her interest in an intersection between health and technology, she also loves Thai boxing and her 23 dogs, 13 cats and 2 water buffaloes back in Thailand. She named her water buffaloes Potayto and Potato.
|Ivan Suarez Robles (Webmaster)
Ivan Suarez Robles is a member of the Class of 2017. Potentially majoring in Computer Science, he is always willing to learn more about math and computer science and then seeing how these subjects may be applied in the real world. He wishes to help make the HOPES webpage as accessible and user-friendly as possible so that everyone may learn more about Huntington’s disease and in general become more aware of it. In his free time, he loves to game and to watch movies filled with action. He also enjoys solving a good logical puzzle. He considers himself somewhat of a tinker since when he does not understand something well, he experiments with it until he does.
|Dani Lucas (Graphic Designer)
A sophomore majoring in Architectural Design, Dani could not be more excited to join the HOPES team as a Graphic Designer! Inspired to join HOPES by her little brother’s own special needs, she is particularly interested in using her passion for design to advocate for and help empower families coping with HD. In what little she has of free time, Dani enjoys spinning, running half marathons, yoga, playing on Photoshop, watching hockey (Go Pens!), and, most importantly, eating Chipotle.
|Emily Ling (Student Researcher & Web Developer)
Emily Ling is a freshman who is so excited to be at Stanford. She still has no idea what she wants to major in, but she’s particularly interested in health and technology. She was inspired to join HOPES because of several people in her life who suffer from neurodegenerative diseases, and looks forward to contributing to HOPES’ mission and spreading awareness of Huntington’s Disease. Despite being from the flat plains of the Midwest, Emily loves to snowboard, and also enjoys playing tennis, singing, and playing flute. She has an incurable case of wanderlust and dreams of one day abandoning civilization to travel the world.
|Olivia Cords (Student Researcher)
A new addition to the HOPES team, Olivia is a coterm Master’s student in the Earth Systems Department. She is thrilled to be a part of HOPES and to have the chance put the skills she gained as a Humbio major to good use. Always pleasantly dazed and confused by the many places she has wandered to on adventures, she pursues a dangerous love for polo and everything equine. Her recent achievements include death in a water gun war for the sake of chocolate and the true refinement of her napping abilities.
|Cindy Yu (Web Developer)
Cindy is a new member of the HOPES team as of spring quarter 2015. She is currently a freshman planning to major in Computer Science. She has been tinkering with websites ever since she discovered Neopet user pages in fifth grade and has enjoyed building websites ever since. She enjoyed using her skills to help non-profit organizations back in high school and is excited to contribute to a project focused on helping others through education and awareness.
|Caitlin Esparza (Student Researcher)
Caitlin is a member of the Class of 2016 and a Human Biology major with a concentration in “The Science and Narratives of Neurological Disease”. As a freshmen RA, peer counselor, and EMT, Caitlin has been a member of many different groups on campus but is especially excited to be joining the HOPES community. She has a passion for understanding the subtleties of illness experiences as well as breaking down communication barriers between the many players in health care- from researchers to patient families. HOPES is an organization that works to do both of those things and Caitlin can not wait to get started. In her spare time Caitlin is an avid cook, Game of Thrones fan, and dog lover.
- Morgan Thompson, Ph.D. – Editing Consultant
- Danielle Simmons, Ph.D. – Editing Consultant
- Ricardo Mouro Pinto, Ph.D. – Editing Consultant
- William Durham, Ph.D. – Faculty advisor, Bing Professor in Human Biology, Department of Anthropological Sciences
Past Team Members^
- Ravali Reddy – Project Leader & Student Researcher, B.A. in Communication, minor in Biology
- Brian Ombonga – Web developer, B.A. in Science, Technology and Society
- Cindy Au – Graphic designer, B.S. in Biomedical engineering
- Jeffrey Choi – Student Researcher, B.S. in Biology and B.A. in Classics
- Amy Lanctot – Student Researcher, B.S. in Biology
- John Pulvera – Web developer, B.S. in Computer Science
- Julia Nguyen – Student Researcher, B.S. in Biology
- Iberia Zafira – Graphic designer, B.S. Earth Systems
- Aimee Zhang – Project Leader & Student Researcher, B.A. in Psychology
- Stephanie Liou – Project Leader & Student Researcher & Webmaster, B.S. in Science, Technology, and Society
- Briana Tatum – Student Researcher, B.A. in Human Biology
- Yi Lu – Project Leader & Student Researcher, B.A. in Anthropology
- Elizabeth Heimbaugh – Graphic Designer, B.A. in English
- Joey Masri – Project Leader & Graphic Designer, B.A. in Human Biology
- Margot Hedlin – Project Leader & Student Researcher, B.S. in Biology
- Pooja Bakhai, Researcher, B.A. in Human Biology
- Tiffany Wang, Project Leader & Researcher, B.S. in Biology
- Faren Clum, Project Leader & Researcher, B.A. in Human Biology
- Danny Neumann, Web Developer, B.S. in Geophysics
- Andrew Pipathsouk – Researcher, B.S. in Mechanical Engineering
- Jean Ansolabehere – Researcher, Senior in Human Biology and English
- Natalie Justicz – Graphic Artist, Senior in Human Biology
- Adam Hepworth – Project Leader & Researcher, Senior in Human Biology and Philosophy
- Mesa Schumacher – Graphic Artist, B.A. in Anthropological Science
- Amy Frohnmayer – Researcher, Psychology
- Eric Whitney – Researcher, Human Biology
- Jonathan Dyal – Project Leader & Researcher, B.A. in Human Biology
- Justine Seidenfeld – Researcher, B.A. in Human Biology
- Matt Woloszyn – Researcher, English
- Alicia Follmar – Researcher, Human Biology
- Aliyya Haque – Researcher, B.A. in Human Biology
- Christina Chen – Project Leader & Researcher, B.A. in Human Biology, ’07
- Devon McGee – Project Leader & Researcher, B.A. in Human Biology, ’06
- Stanislav Jourin – Art Director, M.S. in Digital Imaging & Design at NYU, ’04
- Kim Taub – Project leader & Researcher, B.A. in Human Biology, ’05
- Taylor Altman – Researcher, B.A. in Human Biology
- Jia Hou – Researcher, B.A. in Human Biology
- Agnieszka Milczarek – Researcher, B.S. in Biology and B.A. in English
- Leon Hsu – Researcher, B.A. in Human Biology, ’05
- Clare Tobin – Researcher, B.A. in Human Biology
- Michael Morici – Researcher, B.S. in Biology
- Tonkid Chantrasmi – Web developer, Graduate Student in Mechanical Engineering
- Shawn Fu – Web developer & graphic artist, B.S. in Biology, ’03
- Amy Hsu – Project leader, B.S. in Mathematical and Computational Science, ’02
- Matt Stenerson – Project leader & researcher, B.A. in Human Biology, ’03
- Cathy Barnard – Researcher, B.A. in Human Biology, ’04
- Kaizad Cama – Researcher, B.A. in Human Biology, ’03
- Peter Chang – Researcher & web developer, B.S. in Biology ’03
- Darwin Chen – Researcher, B.A. in Human Biology, ’02
- Tucker Cunningham – Web developer & graphic artist, Senior in Computer Science
- Jaclyn Czaja – Researcher, B.A. in Human Biology, ’02
- Karen Hammond – Researcher, B.A. in Psychology at Carleton College, ’03
- Kelvin Ho – Web developer & graphic artist, B.S. in Computer Science, ’04
- Tracy Ho – Researcher, Senior in Human Biology
- Vinita Kailasanath – Researcher, B.A. in Human Biology and American Studies, ’03
- Shashikant Khandelwal – Web Developer, Graduate Student in Computer Science
- Ruth Lo – Researcher, B.A. in Human Biology, ’04
- Jean-Gabriel Morard – Web developer, Graduate Student in Computer Science
- Melissa Schapiro – Researcher, B.S. in Biology & Psychology, ’04
- Gina Schiel – Researcher, Senior in Human Biology
- Elyn Tan – Researcher, B.A. in Human Biology, ’03
- Joakim Vinberg – Web developer and graphic artist, B.S. in Biotechnology, ’04
- Belinda Fu, M.D. – Faculty advisor, Lecturer, Department of Human Biology
- Joanna Mountain, Ph.D. – Faculty advisor, Assistant Professor, Department of Anthropological Sciences and Department of Genetics
- Ronald Barrett, R.N., Ph.D. – Faculty advisor, Assistant Professor in Medical Anthropology