All posts by cbartlett

"The Official Patient’s Sourcebook on Huntington’s Disease: A Revised and Updated Directory for the Internet Age" edited by James N. Parker and Philip M. Parker

Published: 2002 Pages: 206 Summary: “The Official Patient’s Sourcebook on Huntington’s Disease” is a three-pronged guide to learning more about Huntington’s disease. It includes basic information about HD (what it is, how it is inherited, etc.), resources that contain more advanced HD information, and useful appendices with advice on how and where to research specific topics […]

More

“Omega-3 Oils: A Practical Guide” by Donald Rudin and Clara Felix

Published: 1996 Length: 216 pages Summary: “Omega-3 Oils” identifies the lack of particular nutrients in the American diet as a cause of many modern chronic diseases. The nutrients Rudin identifies include omega-3 fatty acids, fiber, and specific vitamins, minerals, and antioxidants. According to the author, a shortage of these nutritional basics in processed foods leads […]

More

“A Caregiver’s Handbook for Advanced-Stage Huntington’s Disease” by Jim Pollard

Published: 1999 Length: 69 pages Summary: This handbook gives key information for families and nursing home staff that are taking care of patients with late-stage Huntington’s disease. It begins with a description of what HD looks like, particularly in late stages, and then focuses on important issues especially important for these patients. This includes communicating […]

More

“The Agile Gene: How Nature Turns on Nurture” by Matt Ridley

Published: 2003 Length: 326 pages Summary: “The Agile Gene” uses the research of twelve major scientists to explore the nature – versus nurture – debate.  This debate centers around whether our genes or our environment has a stronger effect in defining who people are physically and behaviorally, something that is extremely relevant in Huntington’s disease […]

More

"Huntington's Disease" edited by Gillian Bates, Peter Harper, and Lesley Jones

Published: 2002 Length: 558 pages Summary: “Huntington’s Disease” is a compilation of descriptions of many kinds of research being done in relation to Huntington’s disease. The book categorizes the sections into clinical aspects, genetics, neurobiology, molecular biology, and therapeutic aspects of HD, as well as having a special section on other polyglutamine diseases. Typical explanations […]

More

"Understanding Behavior in Huntington's Disease" by Jane S. Paulsen

Published: 1999 Length: 46 pages Summary: This book breaks down some of the more difficult behavioral issues associated with having Huntington’s disease and suggests several approaches to solving them. After describing how HD affects brain circuitry as the disease progresses, Paulsen connects problems such as apathy, impulse control, and irritability to the neurodegeneration she previously […]

More

"Huntington's Disease: The Facts" by Oliver Quarrell

Published: 1999 Length: 139 pages Summary: This book provides a simple and thorough introduction to all aspects of Huntington’s disease. Topics that are discussed include the history of Huntington’s disease discoveries, patient organizations, and scientific research.  The author also covers behavioral, neurological, and physical characteristics, the genetics of HD, and genetic counseling. Quarrell uses straightforward […]

More

"The Test" by Jean Barema

Published: 2005 Length: 160 pages Summary:In “The Test: Living in the Shadow of Huntington’s Disease” by Jean Barema, a successful journalist in France, tells the story of his chaotic emotional life before finally getting tested for the Huntington’s disease gene. At age 52, Barema faces the decline of his affected older brother and younger sister […]

More

"Mapping Fate" by Alice Wexler

Published: 1995 Length: 321 pages Summary: In “Mapping Fate: A Memoir of Family, Risk, and Genetic Research”, Alice Wexler reflects on her personal and academic experiences with Huntington’s disease. Wexler and her sister, Nancy, watch as their mother slowly deteriorates after her HD diagnosis in her 50s, while they are confronted with their new at-risk statuses. […]

More