All Posts In Managing HD

Cueing Device For Improving Gait Ability in Parkinson’s Disease and Other Motor Disorders

The parts of the brain most affected by Huntington’s disease (HD), the basal ganglia, are groups of neurons at the base of the brain. Basal ganglia are responsible for the motor movements of the muscles in the body. When cells in basal ganglia die, a common pathological symptom of HD, patients experience uncontrollable muscular movements. […]

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Potentials of Telehealth Devices for Speech Therapy in Motor Disorder

Introduction: Rapidly evolving technology influences our daily lives. In particular information and communication technologies allow us to communicate faster and more globally than ever before. In this article, the possibilities of technological developments in healthcare, particularly for patients with Huntington’s disease (HD), will be explored. Patients with HD often struggle with speech intelligibility, a measure […]

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A Case Study: Pregnancy and Symptomatic Huntington Disease

Although symptomatic HD patients are rarely encountered during pregnancy due to its late onset, the shift toward older maternal age means doctors will more likely encounter pregnant patients with HD. A search of the entire PubMed literature from January 1966 to August 2007 yielded 203 reports focusing mainly on prenatal diagnosis and counseling among healthy […]

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Lifestyle and HD: Table of Contents

Read more about lifestyle and HD! About Lifestyle and Huntington’s Disease Family Planning Physical Therapy and Huntington’s Disease Treatment and Management Physical Exercise Genetic Testing Sleep and HD Stress and Huntington’s Disease Driving and Huntington’s Disease Talking to Children about Huntington’s Disease My Friend has Huntington’s Disease – How can I help? Meditation and HD […]

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Google Glass and HD

The part of the brain most affected by Huntington’s disease, the basal ganglia, are groups of nerve cells (neurons) at the base of the brain. Basal ganglia are responsible for the motor movements of the muscles in the body. When cells in basal ganglia die, a common pathological symptom of HD, a person experiences uncontrollable […]

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Companion Animals and Health

When most people consider therapies, they often think of prescriptions and side effects. However, animal companion therapy is proving to be an effective means of improving well-being among patients. Many of the benefits of animal companion therapy can extend to patients and family members living with Huntington’s disease. This article highlights the physical effects caused […]

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Advocacy: How to Get Involved

Advocacy, by definition, is the means through which an individual or group attempts to influence public policy. The Huntington’s Disease Society of America website states that advocacy, pertaining to Huntington’s disease (HD), is sharing your personal HD story, as well as asking elected officials to support efforts to “improve access to treatment, medical care and to find a cure.”

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Medical Marijuana Policy in the United States

. Disclaimer: This article is meant to be purely educational—HOPES neither condones nor condemns the use of marijuana for medicinal purposes. Throughout the past several decades the use of marijuana for medicinal purposes has received increasingly more attention.  The active ingredient in marijuana belongs to a class of compounds called cannabinoids, which have been used […]

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Advance Directives

In the last stages of Huntington’s disease (HD), patients have difficulty thinking and communicating clearly, so decisions about their end-of-life medical care often fall to doctors and relatives. However, many people with HD have strong opinions as to how they would like their last years to unfold. Advance directives are instructions written by mentally and […]

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Insurance and HD

Healthcare reform has been a hot topic in the United States in recent years, and many important changes are continually being made. In this article, we will take a look at some alterations that are particularly relevant to HD patients and their families. The first half of the article discusses the Genetic Information Nondiscrimination Act […]

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Family Planning

Family Planning The decision to have a family comes with a great deal of responsibility, and many important choices. For people with Huntington’s disease (HD), one of the most pressing considerations in their decision to have children relates to the disorder. People with HD have a 50% risk of passing the disease to their offspring […]

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About Lifestyle and Huntington's Disease

Even when a person is at risk for developing HD there are many things he or she can do about it. Yes, everyone with the HD allele allele will eventually display symptoms of HD. However, the expression of these symptoms is subject to great variability. For example, studies of the HD population in Venezuela revealed […]

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Diet and Neurogenesis

A novel track of research has unearthed new meaning to the old adage “you are what you eat”. Research suggests that our diet plays a role in neurogenesis, the process by which we produce new neurons. Therefore, a diet rich in “brain food” may promote neurogenesis and thereby might repair some of the damage brought on by Huntington’s disease (HD).

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Genetic Testing

Individuals at risk for Huntington’s disease (HD) have the option of undergoing genetic testing, which detects the presence or absence of the genetic sequence that causes HD. The decision of whether or not to undergo genetic testing is intensely personal, with many factors to consider. This chapter will provide scientific background information regarding genetic testing for Huntington’s disease

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Sleep and HD

Humans spend an extraordinary amount of their lives asleep. If you sleep eight hours every night, you will have spent one third of your entire life sleeping. But like coffee or cell phone reception, sleep is one of the most basic aspects of everyday life that you probably take for granted—when you are well-rested, you probably do not think about sleep much, but after you have pulled an all-nighter (or two), you are likely to have a keen perception of your body’s intrinsic drive to go to sleep.

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Red Wine

People have been consuming red wine for thousands of years. Although most people drink wine because of its pleasurable sensory effects, recent studies suggest that drinking red wine may confer several health benefits. Many researchers believe that these health benefits come from a compound in red wine called resveratrol, which has been shown to exhibit neuroprotective effects in several experimental studies in test tubes as well as in various organisms including yeast, worms, and mice

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Physical Exercise

Everywhere we turn, we hear information about the benefits of exercise. From building stronger bones and muscles to reducing the risk of diseases such as diabetes and heart disease, the effects of physical exercise on general health are certainly far-ranging. In fact, a growing body of research is demonstrating that physical exercise is good for your body as well as your brain.

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Physical Therapy and Huntington's Disease Treatment and Management

The onset of Huntington’s disease (HD) is heralded by a wide range of symptoms, from behavioral ones, such as depression and irritability, to physically visible ones, such as bodily tremors, bradykinesia, akinesia, and dysphagia. As the disease advances, symptoms become progressively severe. Physical symptoms, such as involuntary movements, worsen, potentially leading to frequent falls. Although there is currently no cure for HD, there are many treatment regimens that may help slow the progression of symptoms. While most research is aimed at developing drugs and medications to help alleviate HD symptoms, physical therapy interventions also have the potential to improve the quality of life for many patients.

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