Arches. Photo by Daniel Chia
HOPES: Huntington's Outreach Project for Education, at Stanford
Mar
04
2013

“A Physician’s Guide to the Management of Huntington’s Disease”

Published: 1999

Length: 81 pages

Summary: This book is a comprehensive guide, issued by the HDSA, to ways in which physicians can help caregivers and families manage patients with Huntington’s disease. It begins with an overview of the disease and the genetics involved with HD, and then proceeds to discuss HD as a movement disorder, a cognitive disorder, and a psychiatric disorder. The guide also reviews miscellaneous activities like smoking, driving, and end-of-life issues.

“A Physician’s Guide to the Management of Huntington’s Disease” is primarily intended for doctors and caregivers, as it gives precise recommendations about medication dosages and treatment options. However, the way in which each section is broken down into tables, lists, and steps makes it a useful resource for HD patients and families who want summaries of what the standard physician would recommend in a variety of complicated situations at home.

CMB 03/04/2013