LINKS TO OTHER SLEEP SITES


Updated August 24, 1999

| Sleep Disorders Support Groups | Sleep Disorders Centers | Sleep Organizations | Professional Sleep Organizations | Related Professional Organizations |State/Regional Societies & Associations | Sleep Education |

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SLEEP DISORDERS SUPPORT GROUPS

Support Groups are very important in your recovery and treatment plan. Individuals can learn valuable information about their disorder and exchange tips with others who have the same disorder. It is comforting to know you aren't "the only one" who has suffered and now must accept treatment. 
Individuals who attend support groups are more likely to follow their doctor's treatment plan. The groups often times include family members. Family members need to learn about your disorder and learn how they can support you. Support Groups can provide education, acceptance and compliance.

Is your support group online? Please let us know so we can include you in the list! Send the URL/address to: Nodmaster

Narcolepsy Support Groups

Restless Legs Syndrome Support Groups

Sleep Apnea Support Groups -- A.W.A.K.E. (Alert, Well and Keeping Energetic)

The American Sleep Apnea Association (ASAA) is an organization for those who have sleep apnea.

The ASAA A.W.A.K.E. Network plays a crucial role in the ASAA's educational and advocacy efforts. "A.W.A.K.E." is an acronym for "Alert, Well, And Keeping Energetic," characteristics that are uncommon in persons with untreated apnea. Founded in 1988 as a mutual-help support group for persons affected by sleep apnea, the ASAA A.W.A.K.E. Network is now composed of more than 200 groups in 45 states. A.W.A.K.E. meetings are held regularly and guest speakers are often invited to address the group. Topics may include advice on complying with CPAP therapy, legal issues affecting those with sleep apnea, weight loss, treatment options such as oral appliances, and new research findings.

If you are interested in finding a group in your area or starting a group in your area, contact the ASAA. Listed below are some A.W.A.K.E. groups that are online.

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SLEEP ORGANIZATIONS


| American Sleep Disorders Association | Association of Polysomnographic Technologists | National Center for Sleep Disorders Research/National Heart Lung & Blood Institute | National Foundation for Sleep Related Disorders in Children | Sleep Medicine Research Foundation | National Sleep Foundation |

NATIONAL SLEEP FOUNDATION (NSF)
Reid Blank, Associate Director

729 Fifteenth Street NW, Fourth Floor
Washington, DC 20005
Fax: (202) 785-2880
E-mail: natsleep@erols.com
Internet Address: http://www.sleepfoundation.org/

AMERICAN SLEEP DISORDERS ASSOCIATION (ASDA)
Jerome A. Barrett, Executive Director

6301 Bandel Road
Suite 101
Rochester, MN 55901
Switchboard: (507) 287-6006
Fax: (507) 287-6008
E-mail: asda@asda.org
Newsletter: ASDA Update and ASDA News (For members only)
Internet address: http://www.asda.org/ -- URL/Address change as of 5/23/97.

For information on Government Affairs ask for Jerry Barrett.

NATIONAL CENTER ON SLEEP DISORDERS RESEARCH (NCSDR)
James P. Kiley, Ph.D., Director
E-mail: kileyj@gwgate.nhlbi.nih.gov

Two Rockledge Centre Ste. 7024
6701 Rockledge Drive MSC 7920
Bethesda, MD 20892-7920
Tel: (301) 435-0199
Fax: (301) 480-3451
Internet address: http://www.nhlbi.nih.gov/nhlbi/nhlbi.htm

NOTE: The NCSDR is part of NHLBI.

National Heart, Lung and Blood Institute (NHLBI) Information Center: (301) 251-1222

What they offer:
The NHBLI Information Center has a telephone information service to answer questions about high blood pressure, cholesterol, smoking, asthma, heart attacks, heart disease, obesity, blood resources, sleep apnea and insomnia. They have a database with more than 16,000 materials; a library and reading room open to the general public; and regular program updates.

Call the NHBLI Information Center to receive these sleep disorders publications:

To keep up with the latest info on heart disease and/or asthma, ask for a free subscription to HeartMemo/AsthmaMemo. By signing up to receive HeartMemo/AsthmaMemo, you will automatically receive other announcements about NHBLI's health education materials and products.

To receive HeartMemo and/or AsthmaMemo, and to be placed on their mailing list, request the form for the publications. Send completed form to:

NHBLI Information Center
P. O. Box 30105
Bethesda, MD 20824-0105
ATTN: Mailing List Registration

ASSOCIATION OF POLYSOMNOGRAPHIC TECHNOLOGISTS (APT)
Julie Sutter, Executive Director
E-mail: jsutter@applmeapro.com

Tamara Carter, Administrative Assistant
Tel: (913) 495-4475
E-mail: hbrewer@applmeapro.com

P. O. Box 14861
Lenexa, KS 66285-4861
Tel: (913) 541-1991
Fax: (913) 541-0156

Internet address: http://www.aptweb.org/index.htm

NATIONAL FOUNDATION FOR SLEEP AND RELATED DISORDERS IN CHILDREN (NFSRDC)
Mary Kay Jenkner, Executive Director

4200 W. Peterson
Suite 109
Chicago, IL 60646
Tel: (708) 971-1086
Fax: (312) 434-5311

SLEEP MEDICINE RESEARCH FOUNDATION, INC.
4975 Bradenton Avenue
Dublin, Ohio 43017
Contact Person: Karen McCloskey
Tel: (614) 792-7632
Fax: (614) 766-2599
E-mail: 73204.100@Compuserve.Com

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PROFESSIONAL SLEEP ORGANIZATIONS

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RELATED PROFESSIONAL ORGANIZATIONS

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STATE/REGIONAL SLEEP SOCIETIES AND ASSOCIATIONS

The sleep societies and associations membership is generally for professionals in Sleep Medicine. However, one of their focuses/missions is community outreach to inform the public about sleep disorders. If you are not a professional, these organizations can probably give you some information and/or be involved in combined community outreach.

Is your Sleep Society or Sleep Association online? Even if it is not online and you have information to send about its location, address, phone numbers, goals and purpose then please let us know so we can include you! Send the URL, information and address to: Nodmaster

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SLEEP EDUCATION

SCHOOLS OF SLEEP MEDICINE

FELLOWSHIPS

Please note: If you see a mistake, or wrong information, please E-mail: Nodmaster. We welcome your comments, suggestions, or notification of sleep related information.

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